Jenny's CF in pics

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Having a child with a chronic, life-threatening disease affects every part of one's life.

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I had my first pneumonia with 8 weeks. I felt awful !

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I had my first hospital visit with 8 weeks. I was in an oxygen-tent.

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I went from bad to worse. At UNM in Albuquerque they diagnosed me with CYSTIC FIBROSIS. I had to stay there right away.
 

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Mom and I "dead asleep" ~ exhausted by all the tests and diagnoses...
 

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Here they took a CT of my lungs.

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Home at last. The inhaling is my daily routine from now on for the rest of my life !
 
 
 
 

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From now on I have to visit the Hospital every 3 month.
 
 
 
 

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I don't like taking the throat-culture. But it is a MUST for every 3 month, to check if I caught a bad "bug". In September 2004 they unfortunately found out, that I'm MRSA and Pseudomonas pos.

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I absolutely hate getting blood drawn....

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Twice a year they take a x-ray picture of my lungs.

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When my coughing is getting worse and I don't gain weight, I have to get admit to the hospitel for a "Tune up" (Antibiotic IV)

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I have to do a lot of treatment daily to feel better (Inhaling and "The Vest")

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In October 2005 I had a "Liverbiopsy". Unfortunatly they found out, that I have Liverzirrhoses and I need a new liver :(