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Letter's from Jenny :)

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"I just want to say thank you for caring for me and CF.
I know my life is hard, but I have to go through it, so that's why I have you and Dad, Joey, Julia and a family a great family.
And the IV was hard, too, but it was not so bad, right !
CF IS HARD, VERY HARD. I LOVE MY FAMILY"

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"I know it's hard to work with CF and it's hard for me, too.
And so I know you guy's are my life's angels and you two mean more than anything on the earth. And I'm glad I can call you two Mom and Dad."

Jenny's third "Tune up" February 2010

CF Clinic - October 2009

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Jenny's second "Tune up" March 2008.

INFO JENNY November 2006

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Jenny's wish "Going on a Disney Cruise" will was fulfilled in November 2006. Thank you so much so much for making this dream possible. Thank you to "The Make a Wish Foundation New Mexico" and "The Challenge" in Albuquerque/New Mexico. Jenny had the BEST TIME ever !!!

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Jenny on the new flyer of the "Alliance For Stem Cell Research"

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INFO JENNY 10-10-2005
 
On monday the 10th of October, Jenny's liver biopsy took place at our Clinic in Albuquerque.
Our nerves and fear were running high, anticipating the results of it and taking into account all the risk factors of a liver biopsy.
 
The results were =  devistating !!!   Jenny has liver cirrhosis !!!
 
The doctor couldn't even get a proper sample of the liver due to the pieces crumbling apart.
We could barly calm our nerves and we shed, what seemed like, unending tears.
We've been fighting every day to keep Jenny's lungs as healthy as possible, and now it's her liver that will be failing in the near future.
The doctor expressed that from what he has experienced, Jenny could live about 3 more years with her liver (give or take several years).
New Mexico does not carry out any transplantations. I would have to take Jenny to Stanford (San Francisco). A liver transplant in a young child with Cystic Fibrosis, severe lung damage, and MRSA is extremely rare. Along with everything else (told us our CF doctor) Jenny will also need a lung transplant in about 6 to 8 years. We had hoped to get a lung and liver transplant together in several years, but right now her liver is damaged much more than her lungs.
 
Right now we have no direction of what to do.
It's impossible for us to think in the 'norm' right now, due to the imense shock of the results, which we have yet to overcome.
 
At the moment everything seems hopeless to us. We enjoy every second we spend with our angel and admire the strength, bravery, and live-happy attitude she displays during her hospital stays, operations, pain she has to endure...etc.
 
 

after Jenny's liver biopsy
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