Jenny's wish "Going on a Disney Cruise" will was fulfilled
in November 2006. Thank you so much so much for making this dream possible. Thank you to "The Make a Wish Foundation New Mexico"
and "The Challenge" in Albuquerque/New Mexico. Jenny had the BEST TIME ever !!!
Jenny on the new flyer of the "Alliance For Stem Cell Research"
INFO JENNY 10-10-2005
On monday the 10th of October, Jenny's liver biopsy took place at our Clinic in
Albuquerque.
Our nerves and fear were running high, anticipating the results of it and taking
into account all the risk factors of a liver biopsy.
The results were = devistating !!! Jenny has liver cirrhosis
!!!
The doctor couldn't even get a proper sample of the liver due to the pieces crumbling
apart.
We could barly calm our nerves and we shed, what seemed like, unending tears.
We've been fighting every day to keep Jenny's lungs as healthy as possible, and
now it's her liver that will be failing in the near future.
The doctor expressed that from what he has experienced, Jenny could live about
3 more years with her liver (give or take several years).
New Mexico does not carry out any transplantations. I would have to take Jenny
to Stanford (San Francisco). A liver transplant in a young child with Cystic Fibrosis, severe lung damage, and MRSA is
extremely rare. Along with everything else (told us our CF doctor) Jenny will also need a lung transplant in about 6 to 8
years. We had hoped to get a lung and liver transplant together in several years, but right now her liver is damaged much
more than her lungs.
Right now we have no direction of what to do.
It's impossible for us to think in the 'norm' right now, due to the imense shock
of the results, which we have yet to overcome.
At the moment everything seems hopeless to us. We enjoy every second we spend
with our angel and admire the strength, bravery, and live-happy attitude she displays during her hospital stays, operations,
pain she has to endure...etc.
